Wednesday, 23 October 2013

Bats ...

This week we are going batty about bats after a trip to Mount Edgecombe to see their bat cam .. the boys were fascinated and I am quite keen for them to learn about this wonderful creature .. It has a lot of negative imagery around it ..often seen as a scary thing for children .. so this week we are looking at the amazing side of bats .. some great links here and here..

Thursday, 10 October 2013

This week ..


Kitchen table ..a great place to work..

Trying out scootering guided by a big brother.

Chooks enjoying Autumn Sunshine

And discovering a myriad of mushrooms .

The chicken photo seems to want to be here twice ! X


Night time with children can sometimes be difficult .. Night time with autistic children can be equally as exhausting .. My Reu has never slept ..from the word go's strange how lack of sleep can affect you .. Hallucinations , short tempers and the potential for mix ups .. Laundry in the oven ..yes it's been done ..we have an evening routine here's always been the same ..bath time .. No ..bubbles ..he has to see the bottom of the bath ..mummy or daddy need to sit with him ..and maintain eye contact looking away ..bath time lasts and lasts ..he loves the water soothes him ..melts away frustration , I often put some Epsom salts in ..that helps ..then teeth .. Strawberry toothpaste only and pj's ..soft , not scratchy .. We then have milk one .. Look at the moon through the curtains and story .. With milk two .. We then have to lay with him till he drops off .. This typically takes an hour .. He will sleep then .. I adore watching him fall into sleep ..deep breathing and eye rolling until he can fight it no more ... I then slip away .. Typically he will be awake again at eleven ..then 3 ish and then up for the day at seven ...this takes it's toll on all of us .. We take it in turns but with Daddy being unwell I'm doing it ..and it's really really difficult .. I can't see straight and I'm dropping off all the time .. .. He on the other hand is as bright as a button .. Wired .. Less sleep = more wired for him ..... Thank goodness for tea xx


Sunday, 6 October 2013

No words...


No words , no words ... Just numb , just tears , some smiles .. Some laughter that gives to rivers of tears , friends , friends and offers of help , kind words , some words I can hear , some are muffled by confusion and crying.... But stick on the smile .. Carry on , keep going .. A long way to go .. A small boy who spins and spins and soils and spins .. He is hurting too , he doesn't know how to show it ... Dark nights ..autumn sunrises all watched with cups of hot tea .. Blankets and cosy socks .. Brief walks .. And that word .. Cancer .. Almost as common as daily bread these days .. It's with us , an unwelcome guest in our house , in our Daddy .. For now ..until we slay that dragon .. Banish it to a far off kingdom ... For good ..for now..x